Locked Out: 24 Hours In My Fibro Life

Husband is out of town for a possible new work project and I've just come out of a five-day fibro flare. He was concerned he would need to cancel his trip but A. Thankfully it ended in time B. I'm resourceful even when in dire pain C. I adamantly refuse to let my health hold …

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“Invisible Illness” Emergency Room Trip

{Find a typo, and I can’t even.} I think I look smokin’ in my new Mardi Gras dress. However, I’ve been in a full body flare for over 48h. Widespread pain with pins and needles. On fire. It’s dire. Strangely none of the 18 fibro points hurt. The pain meds protocol put in place by …

Rehab? Yes, Yes, Yes

“They tried to make me go to rehab/I said, no, no, no/Yes, I been black/But when I come back, you'll know, know, know.” -Amy Winehouse Outpatient Functional Restoration Program at my hospital, you had me at sleep hygiene! {I actually QUIT after two days! Wrong program for “young” fibro patients, to say the bleeping least} …

Multifaceted Advice From a Brilliant Rheumatologist

I’ve been collecting info re: are ketamine infusions safe to continue on a regular basis? I reached out to a long distance, extremely experienced rheumatologist friend. He gave me permission to post his compassionate response. I hope his advice helps you as it did me. I went forward with two ideas I’d been muddling over: …

“What You Fear in the Night”

  "What you fear in the night in the day comes to call anyway/And we all get burned..."~Einstein On The Beach (For An Eggman) by Counting CrowsI fell asleep before 9p after a terribly painful, long Sunday. Right side of the neck pain, specifically. Like someone pressing on a bruise or sore muscle, with no …

Quick Pic: “Fall Risk”

Ketamine Friday underway. I’m seeing triple. Makes typing like a video game. First Zofran (avoid med-related nausea). Versed (anti-hallucinatory). Oxygen. Ketamine. The infusion gets you high. Brings you back. Wheelchair to car. Husbands picks up food to end overnight fast. Home to sleep for a few days. Repeat in 36 to 42 days.